I have head to toe SFN symptoms, with the worst burning on my face, arms, feet, and back of my head and neck. Even my butt, labia, left eye, and left side of my throat burn and hurt sometimes.

I was originally clinically diagnosed with small fiber neuropathy based on my description of symptoms (wet and warm running water, burning, buzzing, tingling etc). Also during my neurological exam they found that I have temperature loss from my wrists to mid way up my forearm. It often hurts to wear sweaters due to the material touching my arms.

However, they biopsied my leg in 2 spots (I asked them to biopsy my arm, but they said they don't do that) it was negative for SFN, so I think my technical diagnosis is "skin disturbance", which is ridiculous. But I was told that I need a pain management doc....because really their treatment path is the same - take medication and live with an idiopathic condition.

I'm one year in and my symptoms aren't as bad as when this started in an acute way, with a tremendous amount of pain and burning that drove me to go to urgent care and the ER several times. I am taking 2400 mg of gabapentin and a small dose of nortryptline, so I'm probably masking a lot of the symptoms. Now, when I wake up in the morning, it feels like someone sandpapered my arms, neck and face while I was sleeping that night. I still get quite a bit of burning as well.

To confound this picture, I also developed a vestibular problem at the onset of this with wet, warm and hot sensations in my ear. The ENT has diagnosed me with a central vestibular disorder.

So my story is a little different - neurological deficits found, but small fiber neuropathy not technically used as a diagnosis.