I fully agree Joanna - and it was the first time he has spoken of multi-system autoimnunity in connection with my own journey. Very interesting. Like yourself I would have welcomed the opportunity to try IVIG infusions over another immune suppressant but we are both using a beleaguered NHS and unless CIDP or MMN or one of the rare immune mediated neuropathies (demyelinating) clearly shows up through blood tests, CSF or nerve conduction tests this would not be offered. I do know someone who does get it for her SFN but she has been very lucky with her postcode area and her enlightened specialist. Imuran is defintely my best option for now I feel. I noticed the SFN went away briefly when I was back on Methotrexate injections last year. The doctors assumed it was secondary Raynauds as I was taking Nifedipine at the time. But I'm quite sure it was the MTX.

It is interesting that the burning pain in hands and feet have eased recently - ever since the flu came on. But I do have lots of other nerve pain and my legs feel cold and wet - feet like ice blocks. My GP took tissue samples from each calf to send off to Edinburgh on Wednesday. It will be interesting to get the results but I told my rheumy I'm not expecting anything to flag up now.

Good luck and I'll keep my eye out for your future posts. Feel free to PM if it helps. Mat