Carolinarose, how did your diagnosis come about? Man this is a really alienating feeling cause I usually am pretty good and being close with my suspicions and this crps stuff doesn't sound like a short term or easy thing. It actually reads very scary.

The hand specialist I went to is one of the best and my family keeps reminding me of that when I say he's got to be wrong. He thinks having my body crushed was probably what started this. But the only thing that broke was my back. And I had that reconstructed (when I got insurance years later).

What did your doctor suggest? Did you know about this (what do I call it? A disease?)and did you suspect it?

I can't figure out if I should go back to being a hairstylist and just having terrible pain. Also I drop things alot and do things like accidentally poke my finger in someone else's mouth lol luckily it was a long term client. The doctor said use it or lose it but my brain says rest it dont test it.

All I've been referred to is a pain management specialist. Who am I going to ask my questions to? And really is this a forever thing? As I think I can tie so many things to being a possibility of another affected area. Ugg I am just so glad I found a place to talk about this. Cause that's what I feel I need to do.

Can anyone tell me, as I've been reading lots of drs are resistant to acknowledging this syndrome but they were really old articles, am I going to be met with my gp for instance, thinking myself and this hand specialist she sent me to is nuts? (His reputation is top notch. He's been noted for being a leader in digit regeneration research so he's no quack)