Originally Posted by joanne721

Hello All,

I am fairly new to this forum and would welcome any input on tremor. I was diagnosed with PD in February 2014 when I first started noticing a slight tremor in my thumbs. Went through the regular tests, MRI etc. Saw three neurologists, two were MDSs. Of course, looking back, I have had other minor symptoms for several years (coordination trouble: typing and brushing teeth, messy sometimes small handwriting; stiff arms when I walk but not all the time, a bit of trouble with my gait -- I have to think about walking smoothly).

But tremor is the big one and over the last eight months it has gotten worse. It's embarrassing to eat in restaurants now, for instance, and it has also spread to my left leg. I shake the whole table. I'm a graphic designer and need to spend hours on the computer. It's getting more and more difficult to do my work.

I have tried a number of things to get it under control (Sinemet, Requip, Cannabis CBD tincture, increasing my exercise, CoQ10, Vitamin B12, Aloe Vera juice, Mucuna Pruriens powder, probiotic diet) but nothing seems to lessen the tremor.

That's not exactly true. It is worse in the morning, or when I'm stressed, and after exercise. If I lie on the couch in the evening or late afternoon and watch a movie or something it almost goes away. It is also lessened by walking around, pacing, etc -- but I can't be moving all the time or spend my life lying on the sofa!

Since increasing my focus on a healthier lifestyle of diet and exercise other symptoms like my stiff arms and gait have gotten better and sometimes my writing is almost normal (still trouble brushing teeth so bought an electric tooth brush) -- but the tremor just won't quit.

One neurologist told me tremor is difficult to treat and has a mind of its own but I am not ready to throw in the towel. I also read somewhere that there is something called "Tremor predominant Parkinson's" but I don't know much more about that.

Can any of you suffering from tremor please post any advice or wisdom you may have to share? Details are appreciated.

Joanne