Quote:
Originally Posted by madisongrrl
She could be correct. I too have face, eye, ear, jaw and throat problems on the left side of my face (along with burning symptoms body wide). Nothing showed up in my MRI so I have not had any definitive answers. The left side of my face flares when my body flares and burns, so I'm thinking that it is small fiber neuropathy. Even my darn left eye burns. These things are just hard to diagnose. The onset of my symptoms was fairly acute. At the peak of my situation, I woke up one morning feeling paralyzed and was needles from behind my left eyeball, back of throat and all the way down the left side of my body. Scary stuff.
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Thanks so much for this Madisongirl. Mine is very equal bilaterally and I do have mild Rheumatoid Arthritis so the rheumatologist agreed it might be RA flaring in my jaw joints. But I don't think it is I really do believe it's that the SFN has moved up into my jaw and teeth - and this happened months ago before the flu and present pneumonia arrived. It is very confusing when GPs blame everything on winter viruses and my rheumy feels it's all autoimmune. Whom to trust?
Nerve related issues scare me far, far more than joint pain does - but the medical profession seem to be in the opposite boat. I guess if the neuropathic symptoms were happening to them for no aparant reason they would wake up and be equally scared!