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Old 03-24-2015, 11:31 AM
Olraalil Olraalil is offline
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Join Date: Mar 2015
Posts: 7
8 yr Member
Olraalil Olraalil is offline
New Member
 
Join Date: Mar 2015
Posts: 7
8 yr Member
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Quote:
Originally Posted by EnglishDave View Post
Hi Olraalil,
I'm sorry you have this terrible problem and confirmed dx, have they told you what the cause is? My TN is caused by an arterial knot around the nerve before it branches, but I am one of the unlucky few who has chronic Neuropathic Facial Pain and Parasthesia as well.
I suffered an extreme allergic reaction to Gabapentin, so - for my whole body Neurological Hypersensitivity - I have Lidocaine Infusions and take oral Ketamine. They work wonders for all my Neurological pain (except a new, unrelated type). There are also Lidocaine and Ketamine injections available. These have far fewer side-effects than most meds, Ketamine is even shown to be a mood elevator.
There is no way of knowing how long you will have this without a cause, but being Depressed - though natural - is making things worse. Have you spoken to your GP about your mood? If not, I urge you to do so. Depression rarely goes away without help and it insidiously feeds off our pain.
Over time - with acceptance - you do learn to 'cope' with daily Chronic Pain. It is hard, but there are good days and bright spots which you learn to appreciate more, instead of taking for granted. All the time remember circumstances may change tomorrow.
Any time you feel like talking, I'm here.

Dave.
Thanks, Dave, for your reply. I am trying to get an appointment with a psychotherapist...just waiting. I'm pretty sure I'm only depressed because I hurt all the time but thought maybe a professional could help me with the whole 'managing the pain' concept.
All the test results (CT, MRI, bloodwork) show there is no cause for the pain which almost makes it harder to accept. I'm one who wants to know WHY? And I guess I'm a little impatient. I've been hurting for 3 months, but I've read some threads here where people have suffered for years. I don't know how they can tolerate it.
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"Thanks for this!" says:
EnglishDave (03-24-2015), PamelaJune (01-02-2016)