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Old 03-24-2015, 05:11 PM
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madisongrrl madisongrrl is offline
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Join Date: Jul 2014
Location: Midwest
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madisongrrl madisongrrl is offline
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Join Date: Jul 2014
Location: Midwest
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Originally Posted by Kitt View Post
What have you been diagnosed with if you don't mind posting it. Perhaps you have before and I did not see it. Blue finger tips when exposed to the cold makes me wonder. Thank you.
Sorry I haven't posted my whole story yet, I will do that in the future when I get some significant time.

I have been technically diagnosed with a "skin disturbance" since they only punched biopsied my legs. I have temperature loss from my wrists to mid forearm that was uncovered in a Neurological exam. I have head to toe SFN/sensory symptoms, with the worst symptoms being in my upper body.

I was also diagnosed with a central vestibular disorder (Negative MRI; the ENT said it was a problem with neural pathways). I don't necessarily agree with this, since I was assessed 1 year after onset, which makes diagnosis less accurate. It could very well be in the peripheral of my ear. I also have the ENT dept pointing to the Neuro dept asking if they know....ugh.

I've had many lab tests - all negative.

Last edited by madisongrrl; 03-24-2015 at 05:40 PM.
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"Thanks for this!" says:
Kitt (03-24-2015)