Member
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Join Date: Feb 2011
Posts: 179
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Member
Join Date: Feb 2011
Posts: 179
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No, my CIDP started with tingling and vibrating. The weakness came after.
It is not typical cidp, because that usually includes proximal weakness. All of the doctors I have seen agree it's some sort of acquired inflammatory neuropathy or "atypical cidp".
I have had treatments with prednisone, IVIG, plasma exchange and rituxin. I have been treatment free since August of 2013. I really don't know 100% whether it just stopped progressing or whether there was an immune attack and the treatments put it out.
Either way the nerves are not regenerating on their own. so I'm hoping this stem cell therapy will help.
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