Quote:
Originally Posted by northerngal
No, my CIDP started with tingling and vibrating. The weakness came after.
It is not typical cidp, because that usually includes proximal weakness. All of the doctors I have seen agree it's some sort of acquired inflammatory neuropathy or "atypical cidp".
I have had treatments with prednisone, IVIG, plasma exchange and rituxin. I have been treatment free since August of 2013. I really don't know 100% whether it just stopped progressing or whether there was an immune attack and the treatments put it out.
Either way the nerves are not regenerating on their own. so I'm hoping this stem cell therapy will help.
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Just wondering when the weakness and numbness began as it might indicate how long the nerves have been damaged. How long did you have just the tingling/vibrating symptoms for?
Also, are you saying that you haven't progressed since Aug 2013? That sounds like it was put out some how.