 |
Member
|
|
Join Date: Jun 2007
Location: Houston, TX. Orig.from Lincoln, NE.
Posts: 517
|
|
|
Member
Join Date: Jun 2007
Location: Houston, TX. Orig.from Lincoln, NE.
Posts: 517
|
HI All,
I truly thought I was going crazy after seeing several dr.s and having many tests. I started documenting how I hurt.....first both shoulders, then both thighs, then both hands.......it just moves around all the time. It can change places in 10 minutes time! Finally when I saw a Rheumatologist he didn't look at me like I had 5 arms! At first he thought I had Polymyalgia......but after a few tests and several weeks on steriods he realized that wasn't my problem.....and after a few more tests I had the nerve/muscle biopsy that finally showed that I have neuropathy myopathy. At least I don't feel crazy anymore.......but I'm still in pain. I'm hoping it doesn't get worse but after reading about it, it sounds like maybe I'm just in the beginning of this ride! Roxie
__________________
.
Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
|