I'm on a day : lyrica 900mg, 10 mg nortrytaline, , vit d, 30 mg mirtazapine ( for depression- helps get a few hours sleep, heavy sedative), 2 x 20 ug/h butrans patches that get changed each 7 days. I have also been having stellate ganglion nerve blocks done in my neck every 3months (help a bit but only for few weeks......which is better than I nothing) although last time they tried to fry end of nerve with radio waves, it was agony & had to be aborted. Next up SCS for discussion end of March.......after 13 years with the disease I got POTS, for which I take beta blockers......which help with anxiety and stabilise me a bit. It has been a long dark journey so far with constant pain. I would like to know about SCS good/bad So I can make informed decision. Anyone try ketamine or lidocaine patches.


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