View Single Post
Old 03-26-2015, 08:02 PM
rockenmama rockenmama is offline
Junior Member
 
Join Date: Jan 2015
Posts: 39
8 yr Member
rockenmama rockenmama is offline
Junior Member
 
Join Date: Jan 2015
Posts: 39
8 yr Member
Default

Quote:
Originally Posted by AnnieB3 View Post
Rockenmama, I'm so sorry that you are wheelchair bound! Do you have a good support group? I hope your docs have you on a regimen now that will get you back to walking and doing! How frustrating MG can be. I dread getting worse.
Thanks Annie! I didn't see this earlier! I have a GREAT husband which is about all I can ask for at the moment. At the moment we're still trying to figure out exactly what's going on. I'm still on a presumptive diagnosis (positive repetitive stim test and borderline modulating antibody test) but neurologist keep saying I don't present like a "typical" MG patient but that (this is at a big medical hospital) but I respond to the IVIG). I'm seeing the head of the Rheumatology department tomorrow to hopefully figure out more of the puzzle. I'm far from stable and my meds aren't right and won't be until all or most of pieces are figured out, so fingers crossed !.

Last edited by rockenmama; 03-26-2015 at 08:19 PM.
rockenmama is offline   Reply With QuoteReply With Quote