..am so sorry for all you're going thru...I'm 68 and occasionally have back pain but when I start to complain, I stop and think what my daughter and all of you wonderful people go thru on a minute to minute basis with this life changing disease!! Don't give up..I just am sure that within a few years a cure will be found...Germany and Korea seem to be more dedicated to researching a cure...makes me upset with our USA...I just keep writing those letters and hoping to see progress ~ please be strong and know you are thought of!!