Quote:
Originally Posted by en bloc
Emily,
I haven't read all your posts, but after reading this one, I can say this screams autoimmune. This is exactly how symptoms come on (in flares) waxing and waning along with extreme fatigue. The SOB with stairs is comon and can be from a variety of things to include autonomic dysfunction (affecting BP & HR), your overall fatigue and weakness or just deconditioning from not feeling well and not doing normal activity (you can decondition much faster than one thinks).
I know I've read some of your posts, but I don't remember if you've said they done autoimmune testing. If not, they need to! You could also use a full battery of labs to check everything from anemia, glucose, vit D, B12, SED rate , CRP, to muscle enzymes (due to your muscle weakness)...not to mention all the autoimmune tests and regular labs from a CBC and CMP.
Refresh my memory on what tests you've had done.
UTGrad,
Do your hands turn blue or gray as part of the 'full color spectrum' you mentioned? If so, you should be evaluated for Raynauds.
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Here is a list of tests:
Acth, Plasma Normal Acth, Plasma: 44 pg/mL Final
Epstein-barr Virus (Ebv) IgG + IgM Panel, Serum Normal Ebv Viral Capsid Ag (Vca) Ab (IgM): < or = 0.90 Final
High Ebv Viral Capsid Ag (Vca) Ab (IgG): 2.41 Final
High Ebv Nuclear Ag (Ebna) Ab (IgG): 3.05 Final
Folate, Serum Normal Folate, Serum: 21.0 NG/mL
T4, Free, SerumNormalT4, Free: 1.3 NG/dL
T3, Serum NormalT3, Free: 3.2 pg/mL
02/05/2015 Protein, Total + Protein Electrophoresis + Immunofixation, Unspecified Specimen
Normal Protein, Total: 7.1 g/dL Final
Normal Albumin: 3.9 g/dL Final
High Alpha-1-Globulins: 0.4 g/dL Final
Normal Alpha-2-Globulins: 0.8 g/dL Final
Normal Beta Globulins: 1.0 g/dL Final
Normal Gamma Globulins: 1.1 g/dL Final
Interpretation: Final
02/05/2015 CBC W/ Auto Diff
Low White Blood Cell Count: 3.3 thousand/uL Final
Normal Red Blood Cell Count: 4.30 million/uL Final
Normal Hemoglobin: 14.2 g/dL Final
Normal Hematocrit: 40.7 % Final
Normal Mcv: 94.7 fL Final
High Mch: 33.1 pg Final
Normal Mchc: 34.9 g/dL Final
Normal Rdw: 12.8 % Final
Normal Platelet Count: 186 thousand/uL Final
Normal Absolute Neutrophils: 1838 cells/uL Final
Normal Absolute Lymphocytes: 1119 cells/uL Final
Normal Absolute Monocytes: 261 cells/uL Final
Normal Absolute Eosinophils: 66 cells/uL Final
Normal Absolute Basophils: 17 cells/uL Final
Normal Neutrophils: 55.7 % Final
Normal Lymphocytes: 33.9 % Final
Normal Monocytes: 7.9 % Final
Normal Eosinophils: 2.0 % Final
Normal Basophils: 0.5 % Final
02/05/2015 Lyme Disease Igg+igm, Serum, Reflex Western Blot
Normal Lyme Ab Screen: < or = 0.90 index Final
02/05/2015 Vitamin D Total, 25-Hydroxy, Serum
Vitamin D, 25-Oh, Total: 37 NG/mL Final
Vitamin D, 25-Oh, D3: 37 NG/mL Final
Vitamin D, 25-Oh, D2: <4 NG/mL Final
01/30/2015 Vitamin B1 (Thiamine), Blood Vitamin B1 (Thiamine), lc/MS/MS: 9 nmol/L Final
01/30/2015 Iron + Total Iron-binding Capacity (TIBC), Serum Normal Iron, Total: 53 mcg/dL Final
Normal Iron Binding Capacity: 424 mcg/dL Final
Normal % Saturation: 13 % (calc) Final
01/30/2015 CMP, Serum or Plasma Normal Glucose: 85 mg/dL Final
Normal Urea Nitrogen (BUN): 11 mg/dL Final
Normal Creatinine: 0.76 mg/dL Final
Normal eGFR Non-afr. American: 108 mL/min/1.73m2 Final
Normal eGFR African American: 125 mL/min/1.73m2 Final
BUN/creatinine Ratio: not applicable (calc) Final
Normal Sodium: 139 mmol/L Final
Normal Potassium: 4.2 mmol/L Final
Normal Chloride: 104 mmol/L Final
Normal Carbon Dioxide: 22 mmol/L Final
Normal Calcium: 9.3 mg/dL Final
Normal Protein, Total: 7.6 g/dL Final
Normal Albumin: 4.5 g/dL Final
Normal Globulin: 3.1 g/dL (calc) Final
Normal Albumin/globulin Ratio: 1.5 (calc) Final
Normal Bilirubin, Total: 0.3 mg/dL Final
Normal Alkaline Phosphatase: 44 U/L Final
Normal Ast: 13 U/L Final
Normal Alt: 7 U/L Final
01/30/2015 Erythrocyte Sedimentation Rate by Westergren Method Normal Sed Rate by Modified Westergren: 2 mm/h Final
01/30/2015 ANA (Antinuclear Antibodies) Screen, Serum Normal ANA Screen, Ifa: negative Final
01/30/2015 Rf (Rheumatoid Factor), Serum Normal Rheumatoid Factor: 7 IU/mL Final
01/30/2015 T4, Free, Serum Normal T4, Free: 1.2 NG/dL Final
01/30/2015 TSH, Serum Normal Tsh: 3.31 mIU/L Final
01/30/2015 Vitamin B12 + Folate, Serum or Blood Normal Vitamin B12: 463 pg/mL Final
Normal Folate, Serum: 18.1 NG/mL Final
01/30/2015 T3, Free, Serum Normal T3, Free: 3.1 pg/mL