Originally Posted by en bloc

Emily,



I haven't read all your posts, but after reading this one, I can say this screams autoimmune. This is exactly how symptoms come on (in flares) waxing and waning along with extreme fatigue. The SOB with stairs is comon and can be from a variety of things to include autonomic dysfunction (affecting BP & HR), your overall fatigue and weakness or just deconditioning from not feeling well and not doing normal activity (you can decondition much faster than one thinks).



I know I've read some of your posts, but I don't remember if you've said they done autoimmune testing. If not, they need to! You could also use a full battery of labs to check everything from anemia, glucose, vit D, B12, SED rate , CRP, to muscle enzymes (due to your muscle weakness)...not to mention all the autoimmune tests and regular labs from a CBC and CMP.



Refresh my memory on what tests you've had done.



UTGrad,



Do your hands turn blue or gray as part of the 'full color spectrum' you mentioned? If so, you should be evaluated for Raynauds.