Quote:
Originally Posted by BreezyRacer
Thanks for the reply, soccertese. Are you still able to play at all?
As for meds, I already have access to pramipexole for RLS, and since I started this B vitamin routine I've only been doing 12.5 mg a day (in the morning and under my tongue .. it seems to work better that way) vs the 37.5 mg that I am prescribed. It helps me to focus my eyes a bit. I had not mentioned that above because I don't want people to read to much into these results and interfering with their meds, but it's true for me.
I will get a diagnosis when/if I am faced with having to. I would not dare be first in line in any US drug trials though. Over the many years of dealing with medical issues, not just for myself but family members too, I increasingly find it hard to believe that creating "unnatural" compounds of man made design rarely actually fixes the problem at it's source. Mostly it covers up symptoms or trades one set of symptoms for another.
The whole drug patent process usually has US researchers looking in all the wrong places and looking for patentable compounds rather than the source of the problem. There are, of course, exceptions but it seems that even vitamins are not well understood yet. I find that frustrating .. researchers get paid to come up with patentable solutions rather than doing true research of understanding the human body. End of rant ..
I understand that you're a bit snippy with me, but I would strongly urge you to spent he $20-$30 to try these two things out if you haven't already. They will not hurt you and may help you for little cost. Most important, if they do help they will provide benefits that you cannot get elsewhere. Please try them. I strongly suspect that your balance could improve. I'm wishing you the best.
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you really haven't done much research on pd, there's been as much research if not more on natural products than synthetic and what to you think l-dopa is? it's a naturally occurring amino acid. i guess you haven't read about the success of fetal cell transplants which had long lasting disease reversing affects in a few pd patients? GDNF and other natural growth factors have been tested and are currently being tested.
COQ10, CREATINE, VITAMIN C, VITAMIN E have been tested. exercise has been tested, there are stem cell trials.
with the slow pace of clinical trials and the amazing advances in understanding this disease, i wouldn't totally write off a phase 1 trial of any kind, and like i said, some are just information collecting, no drugs involved whose info will potentially benefit you and others if you have pd.
best of luck. i tried b1 and benfotiamine, no benefit.
i can't play soccer anymore after being diagnosed 12 years ago. but i'm 61 and wouldn't be playing, too much wear and tear. i stopped playing in 2005.
pd is quite a different disease from RLS, but what happens when you see your neuro again, are you going to discuss pd?