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Old 04-01-2015, 10:41 PM
Lisa14 Lisa14 is offline
Junior Member
 
Join Date: Mar 2013
Location: Illinois
Posts: 88
10 yr Member
Lisa14 Lisa14 is offline
Junior Member
 
Join Date: Mar 2013
Location: Illinois
Posts: 88
10 yr Member
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Quote:
Originally Posted by Merl1n View Post
Hey Tecari,
I don't mind ya droppin in ere, if you've got questions then please ask away. I don't have all the answers, but if I can answer, then I will.
Unfortunately you'd have to ask a NS if yours was antisyphon, mine is now but it took them 7 surgeries to decide to add one eventually.
I have found the medical neuro community very difficult, as in, 'we are the dr's, we know better than you, so don't you dare question us'. Often it can be better to get your Dr to ask the questions of the neuro, in writing. It can all be very scary as the patient and if you are not getting acceptable answers, then that can exacerbate the fear. But often the neuros/medicos don't seem to understand this. But if you are having falls then you must follow it up. Can you get a referral to another neuro or a physician to investigate for you. At least that way you'll have someone doing the 'hunting for an answer' for you.

Merl1n
Hey merlin and tecari. I don't mind u dropping in on us tecari, glad to hear from u, I agree with merlin u definatly need a new neurosurgeon! R u on any seizure meds? Dean was really bad when he was on them, falling and stuff. Merlin hope u r doing well. De'an has been referred to a behavioral medicine institute, which deals with chronic headaches and the depression that comes along with the shunt. He is very hopeful. I hope they can help him. We r both getting to the end of the rope. Appt is the 17th. Tecari good luck to u!
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