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Old 04-02-2015, 02:45 PM
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sim00 sim00 is offline
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Join Date: Jun 2011
Location: Italy
Posts: 192
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sim00 sim00 is offline
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Join Date: Jun 2011
Location: Italy
Posts: 192
10 yr Member
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Quote:
Originally Posted by BreezyRacer View Post
Sim00,

I was wondering if you could give me more details on the IV thiamine.

Was it a single treatment? If not, how often?

Do you know how much was given?

Do you know the details of the type of thiamine?

Thanks, and congrats for fighting back and getting a victory!
1 - It's not IV injection but it's Intramuscular injection.

2 - It's not a single treatment. Initially, after a neurological visit, the doctor decides, the proper amount, relatively to your own weight, and how long you have had the disease. (for example, for me, my weight is 80 Kilos, and the Hoehn Yahr scale rate is 2.5) I need a 100mg/1ml Thiamine hydrochloride IM injection twice a week.

3 - In Italy the commercial name is Benerva.

Thank you for your support, anyway we must remember this isn't the cure, but it helps all of us a lot, and hopefully it should halt the disease.

However the doc said that whoever tries this therapy surely responds (in different ways).

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Sim00

Born in 1969, diagnosed PD in 2007, first symptoms 2004. DBS in July 2016.
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"Thanks for this!" says:
BreezyRacer (07-14-2015)