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Old 04-04-2015, 12:41 AM
Neuroproblem Neuroproblem is offline
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Join Date: Feb 2015
Posts: 355
10 yr Member
Neuroproblem Neuroproblem is offline
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Join Date: Feb 2015
Posts: 355
10 yr Member
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Quote:
Originally Posted by baba222 View Post
Hi there,
I agree that maybe starting all over with another pcp could be worth it, if you can.
One of my greatest disappointments personally was how I was disrepected as a neuropathy patient.
My husband received more respect as my caregiver (unable to drive and on major medication now due to the sfn).
I had to constantly appear like I was not in agonizing scary nerve pain.
Is there anyone who can also go with you to your visits?
I am so sorry that you are being treated this way.
thank you for the response, I went onto another forum, where i heard a person who was totally ignored by thier doctors, despite that she had pain and osteoperosis, the doctors think she is a mental case, and she said they think she is only looking for attention, or for drugs.
Thats what my pcp thinks, she dint think its lymes disease, i mentioned a month ago. i forgot to mention my pins and needles have now some random joint pains, and cold feeling, and internal loss of sensations are still troubling.
I feel like she was being dismissive/ignorant to my symptoms, because i told them about my kaiser records, she went through all 79 pages(i never knew it was that extensive), and stated that i went to many different specialists(2 different audiologists, 2 different ent on multiple visits(nosebleeds), A neuro doc(movement and disorder specialist,),multiple pcp visits, possibly an oncologist, because i thought i had lymph glands that were swollen between my hips(2007), dermatologits multiple visits(alopecia areata, steroid injections), had an mri ekg(checked by a cardio and pcp). of course it all happened between 2012 dec and 2013,summer.(some of the visits were years before though.

She called out of the blue last friday, and dismissed my lyme assumptions, and keep pointing it, from her own words(can it be from stress) she said the same exact thing more than a month ago. I am being treated like attention seeker or a drug junkie looking for drugs. I have seen your posts, and it took you so many tests and docs to finally get to the actual diagnosis.
One of my ENT at kaiser was the most ignorant of all the docs, he totally dismissed i had any nasal problems, from nosebleeds, when i switched ent, behold she found the blood vessel that was the cause, in addition allergies(i supsected for many years). This took 4 years to diagnose.

@utgrad, i dont see how your neurologist thinks MS is better than PN, MS is very debilitating with multiple neurological symptoms. and it requires immunosuppresive drugs. I think that doctor is ignorant of ms sufferers.
@glenntaj, thats what they seem to think, I think it gives them an easier scapegoat, or they dont have to try to hard with your case. Its easy to label someone has mental problems, then actually find out if they have the cause of neuropathy. some doctors are blatantly lazy, and dont want to do extra paperwork.(Doctors have to do write up on patients of every visit, what type of tests they issue, drugs prescription, examination, what did they find,,,etc)
@echoes long ago, I HAVE heard of anxiety worsening symptoms, but never causing it. My doctor seems to think like that though, anxiety,strees depression=cause of neuropathy, or percieved neuropathy.)

@Healthgirl, im pretty sure my symptoms are not mentally related like the pcp said, because i developed it suddenly while under the effects of diphenhydramine, dxm, paracetimol, phenyleprine, and it progressed to full myclonic jerks(of legs with restless leg syndrome),(shuddering without a stimulus), and hypnic jerks, random and increased frequency of twitching. I was not even stressed. loss of sensations i cant even fake it even if i wanted to, like people with diabetic neuropathy, they lose thier sensations of thier organs. I even got so bloated, from eating certain things, i couldnt even sleep. This happened all at once, though the loss of sensation i noticed weeks later after loss of smell. Loss of sensations is anything internal, this includes sensations that people take for granted,(tiredness, out breath feeling,,etc)

Last edited by Neuroproblem; 04-04-2015 at 01:01 AM.
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"Thanks for this!" says:
baba222 (04-04-2015), echoes long ago (04-04-2015)