I'm sorry you've been through so much! I hope you're finding a way to cope with all of that trauma!

Here's the article you posted (the last part of it wasn't highlighted).

http://www.ncbi.nlm.nih.gov/pubmed/?term=11474561

That article describes Rach, who hasn't been here for a while. She has POTS, autonomic dysfunction/failure, and suspected MG.

I have to wonder if mutations occur with successive generations of those who have MG, that might cause autonomic failure.

Are you, and Bluesfan, of Northern European ancestry?

BTW, Bluesfan, I hope you do have a B12 deficiency, because it's so easily treated!

Rockenmama, Are you at Mayo or have you been? If not, and you are better and can travel, that would be a good thing to do. OR Johns Hopkins. The Cleveland Clinic is also a pretty good place for autonomic issues.

Actually, MG and mito are not uncommon, just not being investigated that much. There are articles on PubMed about that. There might even be a component of mito due to a biochemical pathway "kink." I wish they were further along with research in this area!

There are so many odd little diseases!

http://emedicine.medscape.com/article/1162238-overview

http://emedicine.medscape.com/article/1215103-clinical

I'm a bit busy right now or I'd give you more. Maybe later.

I really hope your docs put their thinking caps on. Sometimes, however, the answers are very simple.

Annie