Junior Member
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Join Date: Apr 2015
Posts: 31
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Junior Member
Join Date: Apr 2015
Posts: 31
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Thank you all for your response.
I know I am fortunate at this time to not have the skin issues associated with crps. I only get a pin point rash looking area over my previous fracture area. I do have sensitivity to light touch and texture on my foot and leg. I developed severe back pain on that side as well. I have to use the lidoderm patches to sleep or if I know I'll be out and walking for over an hour. I am medicated. I use a cheery pit filled hot pack almost always or a heating pad. I have cold RSD, not true sweating... Just ice cold and deep burning pain with intense buzzing and rain drop sensations or crawling sensations. It is very hard to explain to anyone who doesn't understand. It's so painful most of the time and I have a difficult time weight bearing.
I had never heard of this condition and my explanation of my experience is purely organic at this time, so I may not have all the words to explain my experience. I do the best I can.
The shoe issue seems so petty until I find myself wearing tennis shoes with dresses or dress clothes. As small as it seems, it is highly embarrassing. Socks are a big deal, never considered them as important before... But there are few socks I can tolerate. I live in a cold wet environment and although I had always dreamed of living in New England or Alaska... That is clearly no longer possible. I drove myself 1500 miles recently just to have some warm time for my foot. It was exhausting but very worth it. It was the longest and first time I've left my immediate area in atleast 15 years. The cold intensifies the pain expotentionally. I have tried 3 times to return to work, floor nursing... But it is impossible to go 12 hrs without pain relief and standing and walking 12 hrs... Is at this point but a dream. I grieve for my former life everyday. I'm so sad. It is a deep seated sadness that brings me to tears just thinking of my old life and knowing I will never be that person again.
Anyhow, thank you all for taking the time to respond. I really had no idea other people have similar experiences. I didn't rush to the Internet when I was told I had RSD.. Because I just couldn't accept it and tried to pretend it wasn't happening to me. I am still unsure if reaching out is the right thing... But I realize ignoring the facts has not made my pain go away and being isolated from the condition ... Has only made me more angry, confused and more depressed.
I've never gone to any kind of thereapy and I'm really nervous about it. For me, as a nurse... This whole process of the whole condition evokes deep stigmas which maker feel weak and pathetic. Now.... I'm one of " those" patients... Who cry all the time and take pain meds daily... One of " those" patients. It's been extremely devastating.
I fractured my foot trying to save my patient.....It has cost me greatly. It has left me removed and abandoned from every normal thing I knew in my world. Devastating.
Hope you all had a pleasant day. I did spend a couple hours with my family, but had to get home to rest and warm my foot. I'll be down a couple days. But I know it's important to spend a little time with my family. I am missing out on so much... Especially the last months of my grandmothers time and that saddens me greatly. No one realizes how quickly life can change until it does.
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