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Originally Posted by Faith1001
Hello,
We are quite desperate for a doctor in the DC/MD/VA are who truly understands and specializes in RSD/CRPS. It seems to be rapidly spreading to my mother's other extremeties and our current pain doctor is unaware that this is even plausible. Can you possibly provide information for the neurologist across the street from National Rehabilitation Hospital that you had luck with? We'd like to give it a shot. Thanks! And so glad to hear you had a positive experience.
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Faith,
I am so sorry to learn that your Mother's CRPS is spreading and of the difficulties you are having with her pain management doctor. I could add my story to the collective, as my CRPS has indeed spread. I could also offer to swap "war stories" about pain management doctors for hours; however, I think you are most interested in changing your Mother's situation than venting about it.
Have you taken a look at the Chronic Pain management group at Johns Hopkins? My understanding is that Drs. Raja and Christo have a great deal of experience working with CRPS - both as researchers and clinicians. You can find out more information about both Drs. Raja and Christo in the physicians or faculty tabs of the Blaustein Pain Treatment Center at Johns Hopkins University Medical Center in Baltimore, MD.
Dr. Raja, along with his colleague Dr. Peter Moskovitz, of Washington Circle Orthopedics (located in Washington, DC ), are both members of the Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)'s Scientific Advisory Committee. Though an Orthopedist by trade, Dr Moskovitz is also a Clinical Professorship in Orthopedic Surgery and Neurological Surgery at the George Washington University Medical Center. While Moskovitz is not the prototypical CRPS doctor (i.e. he's not a neurologist, physiatrist, anesthesiologist, etc), do not let that deter you from calling his practice (Washington Circle Orthopedics: 3 Washington Circle, NW, #404, Washington, DC 20037, Phone: (202) 333-2820) to learn more about his treatment approach to CRPS.
Good luck!
CrimsomnHoya