Hi, I have been here before a long time ago. I have full body RSD. I have had 16 high dose ketamine infusions and 12 nerve blocks. I also am pretty sure I have PTSD caused by the VA, doctors and insurance companies. I have been on oral, nasal and topical ketamine for over 2 years and opiates give me hyperaglesia. I have no PC and no PM. I have been risk managed out of every doctors office due to falsified medical records and reduced to only mental health doctors, which honestly have been the only real support as limited as they are with meds.
I recently went to mexico and bought a bunch of 2% injectable lidocaine I stick in the back of my neck and use for a nasal spray because my face and eyes burn so bad. I have a bad cervical spine which I am sure is the mediator of my back, arms, head and face burning.
I am really afraid of not having meds or a doctor. Not that I ever found a PC who understands my symptoms are neuro and not like the normal causes of bladder, pelvic, organ, muscle and bone pain and ANS instability.
The medical community is a 15 minute revolving door, thousands of dollars in useless test and the DEA underground investigators. God forbid ketamine has a very bad rap and is so much safer than opiates, but when they see your med list they freak and you're suspect. I'm so tired of chasing help and fighting insurers and doctors for everything. I'm tired of traveling all over the country too. I just want my ketamine scripts and to be able to just show up every couple months to pee in the bottle and let me have some normalcy. Now I am at square one again.