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Member
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Join Date: Jun 2007
Location: Houston, TX. Orig.from Lincoln, NE.
Posts: 517
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Member
Join Date: Jun 2007
Location: Houston, TX. Orig.from Lincoln, NE.
Posts: 517
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HI Glenntaj!
I have wondered if my problem is autoimmune since I also have Interstatial Cystitis which many believe to be autoimmune.
I have had many tests, and have looked at lizajane's site...but I don't know the exact tests my dr. has done on me. I've had many MRI's, Cat Scan's, X-ray's and LOTS of blood work....and then the muscle nerve biopsy. I'm thinking about printing off Lizajanes charts and taking them to my dr. to see if he'll just mark off what I'm had done so far. He's Always in such a rush when he sees me I'm not sure he's take the time to do that or not. I do know that my Carnitine level was low in the begining of all this and I'm now taking Carnitine supplements and it's back up with in range. Roxie
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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