Quote:
Originally Posted by Steven07
Iv been looking all over to try meet some others that have same thing up with them. Mainly to just have someone to relate to and understand me.
A quick basic explanation of my condition is I have spinal tethering, cysts and its caused major pain in lower body and means spend lot of time not able to do much. Life is mainly lay down get up move then repeat.
Hopefully can meet some others that get me.
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Steve,
Not sure whether this is in the same category as "spinal tethering, cysts. But, when I had my spinal fusion/laminectomy (L4-5) over 8 yrs. ago, the surgeon said he had #1 never seen such a "red angry nerve" (being compressed) and #2, also had never seen anything like the several cysts going in an out of the lumber spine vertebrae areas like I had.
I still experience a lot of spinal pain as well as peripheral neuropathy but one thing I know for sure is to do my best to keep moving and doing some light household tasks. Several time a day, I do need to sit in a comfortable with arms so as not to put too much pressure on my spine as well elevated. Lidocaine patches (prescription only) are very helpful for the spinal pain.
Have you had any Ct scans or MRI's?
Gerry