Wow! Thanks Mrs. D. This is first time I've heard this. I had one neuromuscular doc want me to take Nortryptyline but I was terrified to try it. The next doc agreed with me that I am definitely going to have side effects due to the way I've reacted to other drugs. Right now I am not taking anything regularly. I tried Lyrica for 3 weeks but stopped because it wasn't helping for the pain and I think it might have been depressing me.
My current rheumatologist (have only been to her once) want to try me on Plaquenil because of the "equivocal/ indicative of Sjogren's biopsy", and I'm terrified of that too.

I have also read a report on Plaquenil claiming that it doesn't work any better than placebo.

http://www.2minutemedicine.com/no-be...-joquer-trial/

This report is talking about the fatigue, dryness and typical Sjogrens symptoms but not about neuropathy that has spread throughout the body so I'm trying to find more info on that.