Sorry to hear that your son is still struggling. Like him, I have had RSD from a young age (12 years old - i'm now 20).

Like the others have said, I wouldn't get any injection into an RSD limb. I had a nerve block in my RSD foot when diagnosed which caused me to totally lose my co-ordination and I spent over a year in a wheelchair. I then developed an ingrowing toenail that got infected so had to have it removed, this resulted in me developing severe myoclonic spasms. I've heard of others who have had similar problems also.

Regarding PT, I also had similar problems. I found that the PT made my symptoms worse and I would spend days in bed afterwards with a bad flare, unable to go to school etc. The PT's eventually agreed that it didn't seem to be making any difference, in fact it was making it worse and let me work on exercises at home, when I felt able rather than going to hospital. There is a very fine line between doing too much and doing too little which always seemed to be my problem.

I hope things improve. If you ever want someone to talk to who understands, especially with the school issues, having RSD from a young age etc then feel free to message me.

Alison