Hello Sophie,
Welcome to NeuroTalk!
I'm sorry you're dealing with these headaches and pain. Sounds awful for you.
Sorry about all the questions below...

I'm just wondering which of the forums here would be a next step to check out.
Have you had any scans done on your neck?
Have you ever seen an ENT?
Haven't had a concussion?
Do you get dizzy at all?
p.s. I'll leave the Headache forum link below for starters.
http://neurotalk.psychcentral.com/forum32.html