Annie, thanks for your reply. He has been taking 5000 mcg. methylcobalamin for probably 10 years, also 500 mg. D3 daily for probably 4 years. His doctor told him he could increase the mestinon if he needed more, but he's doing fine with just half a pill after each meal. He hasn't had a colonoscopy but he doesn't have a problem. He hasn't been checked for celiac, but we eat gluten free and lots of veggies because I feel better not eating wheat. We don't eat sugar either (I have PN.)

He's been checked by the doctor at the VA, and he's the one who told him about his blood, but didn't offer any explanation, or do any more testing. I got him some grape nuts cereal because it's high in iron, so maybe it's helping--he hasn't had another blood test since we found out it was low.

He gets up around 5:30 every morning, still goes to work at a business he and our son operate, comes home around 4:00, has an engineering business on the side he works at part-time, and probably 2-3 days per week he looks at jobs requiring engineering advice. He naps before dinner, if home, after dinner til about 9:00, goes to bed about midnight, and starts all over again the next day. He's always been kinda hyper (and I'm not--I go to bed before he does, and get up later than he does, but don't nap in the evenings). Anyway, he's pretty healthy otherwise even though he's lost a lot of strength since this MG started.

His primary doctor checks him every six months, and as he was losing weight, he just chalked it up to old age. The neurologist treats his own mother for MG, and has her on prednisone and Imuran, so I guess that's what he has found to be the best treatment. My husband didn't want to take prednisone after reading how most people here feel about it. And he doesn't want to take Imuran either after reading about the side effects.

Apparently the IVIG was helping bring his other numbers up but not the hemoglobin. He has a lot of "urgency" after the IVIG and a head ache the first day, but then he's back to normal after that. His main problems are tired during the day and loss of strength. His eyes don't droop any more either

I'll have him check with the derm about the Imuran since he sees her so often. I was unable to find any positive comments in reading old postings on this website. Thanks for your comments--I'm going to print them for him to read.