I do have allodynia. I have a patch on my left thigh from knee to hip which reacts to anything touching it, covers, clothes, just resting my hand in my lap. Sometimes it keeps me awake at night. Sometimes it spreads body-wide and feels like a bad sunburn. On those days I have trouble wearing even soft street clothes and furniture upholstery can feel like steel wool. Loose socks can cause it when my ankles feel like they are wrapped in tight ace bandages.

I have hereditary neuropathy with advanced SFN, confirmed by skin biopsy, as well as large fiber neuropathy with muscle loss. Five years ago when my biopsy was done I was found to have very few nerve fibers below the knee and they were breaking down and segmented at hip level. My hands and arms are similarly affected. It is untreatable and progressive. I do get significant relief from medication but I am never really comfortable.

I do not believe that allodynia is unusual with SFN.