Hi Thea,
Welcome!
So sorry for the reason you're here but glad you are and for what I've read.
Since you asked I have besides CRSP a condition called cerebral degenerative atrophy.
In laymen's term my cerebellum is shrinking. That's the part that controls all motor skills which causes me to be in a wheelchair.
Outside of brain surgery, which will never happen, there's no cure or knowing when the shrinking will stop.
To complicate things my CRSP is messing with the central nervous system.
Oh well! It is what it is.
I hope you find relief...