View Single Post
Old 04-11-2015, 03:58 PM
LouLou1978 LouLou1978 is offline
Member
 
Join Date: Feb 2015
Location: UK
Posts: 153
8 yr Member
LouLou1978 LouLou1978 is offline
Member
 
Join Date: Feb 2015
Location: UK
Posts: 153
8 yr Member
Default

Quote:
Originally Posted by janieg View Post
I'm happy to hear some people are doing testing for this, and will be anxious to hear results. Were the tests ordered by PCPs or neuros?

In looking into what, if any, supplements might support sodium channel function, I came across a reference to vinpocetine. It's been mentioned on this forum only three times I think, but am wondering if anyone still here has tried it.
HI there,

here in the UK it would have to be ordered by the consultant neurologist, I am surprised there is not a lot of mention about it on this site. as from how I understand it from my nuero that the number of idiopathic cases are going down and will continue to go down now they are discovering these mutations.
LouLou1978 is offline   Reply With QuoteReply With Quote