Hi Kermit,

My own experience on the twitching was that it started with a nerve compression and area of buzzing that was initially about the size of a quarter, the buzzing then spread up the leg. As it increased I started having twitching in muscles of the nerve's path where the buzzing started. Then as that increased I started having it in my arm on the same side. Eventually, as my nerve calmed down and the swelling went down it resolved , but it took several weeks.

To this day my neuro thinks this was some sort of red herring and completely unrelated. I only know what I experienced was very real and it felt at the time like my nervous system was totally overloaded. I do know from watching videos of Ian Carroll MD at Stanford that pain signals have the ability to jump across the spine and up or down a spinal level if pain is intense enough. They have shown this with functional MRI. I don't know if maybe dysfunctional motor signals might spread in the same way.

Any chance some of this is med related? Always worth a look at side effects and interactions. Sometimes even doctors miss these. Often a pharmacist will know best. Perhaps an increase of the anti-seizure med to dampen signals? There are certainly some things to try.

I hope you find relief soon,
Littlepaw