Quote:
Originally Posted by echoes long ago
ive had PN for 14 years now almost. Large fiber confirmed via emg/ncs, most likely with small fiber involvement now too, though ive never been tested for that. From the beginning my arms would get very tired and heavy very quickly if they were raised at or above the shoulder level. i have to put them down for a few minutes to finish what i started. i might have to do that several times. i also drop things all the time now. I know mine isnt TOS because i have the same thing in my legs, quickly tired and heavy walking up stairs, running or walking any distance.
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I feel the same. Hard to stand on my feet too long. I have to set down. I am dropping things as well, but not all the time. I have to really concentrate on holding things and that helps. When holding a pen or pencil I feel I have lost some grip because I have to stop every few written words and pick up the pen, it slides down my hand. Thanks for letting me know a EMG/NCS will show up if I have motor involvement. I don't know if my weakness is clinical or "perceived". I am scared about my neuro exam because I don't want to be told it is just in my head. I hear so many people on this forum being told that. That is my biggest fear, I think. And of course the future, but for now I am trying to be as optimistic as possible because I know stress can make this worse. Thanks for your input. Sorry you have been suffering with this so long.