Quote:
Originally Posted by EmilySH
I don't know if my weakness is clinical or "perceived". I am scared about my neuro exam because I don't want to be told it is just in my head. I hear so many people on this forum being told that. That is my biggest fear, I think. And of course the future, but for now I am trying to be as optimistic as possible because I know stress can make this worse. Thanks for your input. Sorry you have been suffering with this so long.
|
Hi there Emily,
Rarely would anyone have a perceived weakness rather than one that is there. You have gone from automatically writing etc., to having problems writing. A suggestion is to try to be as calm as possible during the neuro exam. Save your questions until the end and hopefully the neurologist will answer them.
A neurological exam is very thorough and will feel like you have really been examined. And stress does not help, but RARELY causes the sensory symptoms.
Unfortunately, my husband had to say, "I have known my wife for 20+ years and she has changed." Finally that helped with doctors starting listening. I had to act like I was not really hurting when I was so scared and in so much pain. Not getting enough sleep did not help either.
Oh, and if you are going to a teaching place, find out if someone is an attending/resident/or fellow at the beginning. They are supposed to tell you that, but don't always. You might be able to ascertain that from the provider's web site.
This is particularly important if they come in alone and then bring in someone else. Part of your story will be wrong, deleted, or confused with dates and or symptoms.
I am really hoping that you will be heard and that the neurologist you see will be professional.
Godspeed.