I'm not sure if there is another drug. I'm still learning about this disease. He is getting one month of it for free somehow, probably as a trial. The drug costs $7000/month. Then I think it will become an insurance struggle to get it covered after that.

I also selfishly want him to get the genetic test because it impacts my life. Children have 50% chance of inheriting this condition and often times will undergo genetic screening because it is such a devastating diagnosis. And I'm sure it will be a battle with my insurance to cover part of this....especially if his diagnosis is just clinical.