Canagirl,

At this point i take pain meds (Oxycontin and Percocet for break through). When I had to stop Neurtontin, i spent a couple years trying different meds...cymbalta, lamictal, namenda, lyrica,...the list goes on and on. I either couldn't tolerate the side-effects or they didn't help at all. About 4 years ago I took Percocet for a back injury and found it helped the PN. So my PCP started Rxing this, since i get no side-effects.

I also get IVIG for both my immune deficiency and I get a higher dose to help with certain aspects of the PN...more for controlling progression, as most of my PN damage is permanent.