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Old 04-13-2015, 06:36 PM
baba222 baba222 is offline
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Join Date: Sep 2014
Location: Down South
Posts: 408
8 yr Member
baba222 baba222 is offline
Member
 
Join Date: Sep 2014
Location: Down South
Posts: 408
8 yr Member
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Quote:
Originally Posted by Ragtop262 View Post
It is interesting that quite a few others seem to have developed fairly similar symptoms to what I did. Yet, three neurologists including two neuromuscular specialists have said they can find no neurological cause for my symptoms.

I think a lot of you know just how I feel right now. Its frustrating and scary when you know something bad is going on inside of your body but the Doctors can't help you or don't even feel there's anything wrong with you.
Yes, yes, yes!

Before I had the neuropathy, I can't ever remember as an adult being essentially called a liar or worse, mentally ill.

No neurologist believed my symptoms before the skin biopsy. Folks here could tell me what I had. But very well thought of and even famous doctors told me I did not have neuropathy.

My husband and I spent thousands of dollars traveling to other states to be told that my symptoms were not neurological in nature, blah, blah, blah. A wonderful aunt told me that they should have seen me before my symptoms and they would definitely believe me.

My family doctor and a kind female internist believed me. And of course, folks here on this board.

I hope you can stay strong and remember that you are the only one that knows your body.
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"Thanks for this!" says:
echoes long ago (04-13-2015), EmilySH (04-13-2015), KnowNothingJon (04-14-2015), mrsD (04-13-2015)