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Old 04-15-2015, 10:55 AM
Sonia1 Sonia1 is offline
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Join Date: Apr 2015
Posts: 7
8 yr Member
Sonia1 Sonia1 is offline
Junior Member
 
Join Date: Apr 2015
Posts: 7
8 yr Member
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Quote:
Originally Posted by EnglishDave View Post
Hi Olraalil,
I'm sorry you have this terrible problem and confirmed dx, have they told you what the cause is? My TN is caused by an arterial knot around the nerve before it branches, but I am one of the unlucky few who has chronic Neuropathic Facial Pain and Parasthesia as well.
I suffered an extreme allergic reaction to Gabapentin, so - for my whole body Neurological Hypersensitivity - I have Lidocaine Infusions and take oral Ketamine. They work wonders for all my Neurological pain (except a new, unrelated type). There are also Lidocaine and Ketamine injections available. These have far fewer side-effects than most meds, Ketamine is even shown to be a mood elevator.
There is no way of knowing how long you will have this without a cause, but being Depressed - though natural - is making things worse. Have you spoken to your GP about your mood? If not, I urge you to do so. Depression rarely goes away without help and it insidiously feeds off our pain.
Over time - with acceptance - you do learn to 'cope' with daily Chronic Pain. It is hard, but there are good days and bright spots which you learn to appreciate more, instead of taking for granted. All the time remember circumstances may change tomorrow.
Any time you feel like talking, I'm here.

Dave.
I have the same thing and it can wear you down. However, I keep researching and looking for new things to try. The pain dr. suggested Botox, but in my state medical marijuana is a possibility, so I am looking into that as well. I have just learned that Yale has a clinic that specializes in facial pain, so that is my next stop.
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