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Old 04-15-2015, 08:20 PM
stormangel stormangel is offline
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Join Date: Apr 2015
Location: number ukr
Posts: 3
8 yr Member
stormangel stormangel is offline
New Member
 
Join Date: Apr 2015
Location: number ukr
Posts: 3
8 yr Member
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Quote:
Originally Posted by EnglishDave View Post
Hi Olraalil,
I'm sorry you have this terrible problem and confirmed dx, have they told you what the cause is? My TN is caused by an arterial knot around the nerve before it branches, but I am one of the unlucky few who has chronic Neuropathic Facial Pain and Parasthesia as well.
I suffered an extreme allergic reaction to Gabapentin, so - for my whole body Neurological Hypersensitivity - I have Lidocaine Infusions and take oral Ketamine. They work wonders for all my Neurological pain (except a new, unrelated type). There are also Lidocaine and Ketamine injections available. These have far fewer side-effects than most meds, Ketamine is even shown to be a mood elevator.
There is no way of knowing how long you will have this without a cause, but being Depressed - though natural - is making things worse. Have you spoken to your GP about your mood? If not, I urge you to do so. Depression rarely goes away without help and it insidiously feeds off our pain.
Over time - with acceptance - you do learn to 'cope' with daily Chronic Pain. It is hard, but there are good days and bright spots which you learn to appreciate more, instead of taking for granted. All the time remember circumstances may change tomorrow.
Any time you feel like talking, I'm here.

Dave.
Wow, I have th too but only for past 4 weeks, allergic gabapentine and pregablin too. What I find works fir th pain is 75mg amitriptyline and cocodomal. I get the thats. Pain to remind me to take at night. Im here for different Nero problem, but nice to know like minded people who understand that rare please if being hit by a baseball bat constantly. Hugs
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"Thanks for this!" says:
EnglishDave (04-16-2015)