Mat52
Hi - sorry I can't offer much help on sorting out your diagnosis but some of your symptoms are familiar and thought I'd pass on what has worked for me.
Periodic sores - so long as they are not ulcerated - I use Vitamin A ointment or cream (the cream is easier to use in cold weather) I found out this was what the nurses in hospital were using to treat bed sores. Should be available OTC at your chemist - very cheap. If they say they don't have it ask them to look in the baby section.
Nose bleeds - if they are small and due to vasculitis - I was prescribed 'Foban' (Fusidic Acid) - use sparingly (too much goes back down your throat and tastes yuk! - I apply it with a cotton bud) Also works on dermatitis.

All the best for getting your diagnosis sorted.