Hi canagirl
I've been following some of your posts and have a general idea of what you're going through - sorry if I mess up on the details - insomnia last night makes for a fuzzy brain in the morning.
I understand your urgent need to relieve the pain and find answers. Your mind and body are in shock from changing from being a normal functioning person to this 'new you' which you find unacceptable, intolerable and down-right frustrating.
Five years ago, (after 10+ years of mis-diagnosis) I was given a diagnosis of a life-long auto-immune condition and was told "There is no cure - you have to learn to manage it". One of the important things that helped me was to learn to 'stop being so hard on myself'. I had to stop mentally berating myself for all things I was no longer able to do. It helps to remember to 'be kind to yourself'. I often say these 2 things when I'm going thru a tough moment. Another one which I use is 'time for a break' when I find myself over-doing things.
Consider yourself a step ahead for finding the Neurotalk website early on - it took me over 4 years - this network has helped me to manage my search and hopefully soon a diagnosis and treatment for another secondary condition which is developing.

Re your questions on pain management I came across a link by another poster earlier this morning about a useful neuro website about pain treatment. If I remember correctly it mentions that an expectation of a reduction in pain, with medication treatment, of about 30% is normal. I haven't been able to refind the post but did bookmark the site. Here's the link:

http://myelitis.org/symptoms-conditi...ropathic-pain/

Hope this helps. Stay strong in your search canagirl.