Quote:
Originally Posted by Neuroproblem
I actually emailed igenex, and they sent me thier test list, and cost, for different panels, they were very expensive, hundreds to more than a thousand.
tHE REASON why a non-llmd pcp/specialist, because the tests is not widely accepted, and igenex is a private lab, and thier motivation is to make pure profit, and the tests itself are not recognized by them. Most experimentation of science are done in peer-review journals, like new england of medicine journal, or something like nature or science magazines, these are technical data on experiments that have been done and verified. igenex or chronic lyme disease tests dont have this, there are sites out there claiming they can see lyme in multiple forums, but those are anecdotl, they dont show any evidence.
I had to ask the question: "why is igenex the only one, testing lyme and coinfections, and why a significant portion of thier tests are always positives?
-just another note, chronic lyme believers dont even believe in the accuracy of the test, they use, and instead believe that they have lyme, because thier llmd said so.
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Yeah, I'm not one of those "my doctor said so" people. I know what you mean though.
I am being very laid back while I consider treatment and waiting for the labs he ordered through quest to come back. I went Monday, and had everything forwarded to my primary (even though he is almost useless... knows nothing about small fiber neuropathy. I actually think he is frightened of it. It was his PA actually who discovered my crazy high ANA- so I'll probably stick with her as my primary)
The lyme doctor gave me a packet of his info and research to give to my primary doctor and is willing to work hand in hand with him. This guy is a real doctor and knew things that most average primary doctors do not. He went over my blood work and asked me if I was checked for this, that, and the other thing (not having to do with lyme....) He is the first doctor who recommended a hematologist to find out why my ferrritin and copper are so low. He recommends a mammogram soon because I turned 40.
I do think he is a mad scientist who obsesses on tick borne illness, but that might not be a bad thing- since it is a possibility.