Originally Posted by Billylyne5

I am only 44 so my symptoms should not be age related, thyroid is all ok, I haver been offered a lip biopsy the Rheumy was only interested in bloods as her way of diagonosing or offering treatment, she actually said be glad I only have SFN and not sjogrens lol yet she also said some doctors will diagnose sjogrens on symptoms alone....then why should I trust her ????



No allergies I even tried antihistamines in case but they did nothing.

I had the schimers test and the evaporation test showing that I have both poor quality tears and not enough of them.



I get a dry throat, hoarseness, also developed GERD at same time.

My joints hurt a lot hands wrists feet ankles. My feet are incredibly painful all the time and are tender to touch on balls of feet, top and ankle joints. Hands and fingers swell, knuckles go red.

I have petechiae that came on recently

Fatigue - like I have to just lie down and can't move tiredness

Numb fingers and toes plus numb areas all over the place, burning pain in feet and random patches -like sunburn

Wierd rib/chest pain tender areas /stabbing pain

Randomly get a low grade fever

My DSDNA test came back equivocal at 17 but Rheumy didn't even mention that

My white count is always on the low to just on normal

Negative MRI and nerve conduction studies

Oh had ultra sound on my wrists and that showed synovial thickening but Rheumy said it wasn't inflamation but mechanical what ever that means - she put that in the letter discharging me so I haven't been able to ask her.



I am very frustrated and feel like I am struggling to manage the symptoms and getting no where near a diagnosis or even treatment.