Quote:
Originally Posted by Billylyne5
I have had blood tests for sjogrens ANA. anti ro and La CRP and ESR all normal hence her stating I cannot have sjogrens
My podiatrist told me about corneal confocal microscopy which is non invasive test for SNF because even my SNF is only a diagonosis through elimination of everything else the neuro tested for
I can't get the lip biopsy without a Rheumy but she has discharged me.
I don't take antihistamines only once to see if it helped my eyes.
I also have awful dry inflamed eyelids that will not get better 😏
Feeling pretty fed up with it all really
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I actually got a referral from a neurologist. Then I went and handed the ENT the script and he said he didn't need it. Turns out I could have just called an ENT (who knows how to do this procedure) and consulted with them and they can do the biopsy and submit. See about your insurance. I could have had mine done months ago if I knew this. I think some dentists, dermatologists and other types can also do the biopsy.