Originally Posted by Susanne C.

Thank you for the replies! I agree that the technician could gave been nicer, my husband believes that it being late Friday afternoon didn't help, but they gave me that appointment,
RLS is a common side effect of CMT, I have had it since I was a child, but it has settled down now. Because this was of the toe it had to be in a very specific position, no pillow possible. which put a lot of stress on short, weakened muscles, hence these were more spasms than RLS. I have no feeling below the knee so my feet could have been tap dancing on mars from my perspective.
It is a hot button issue for me anytime I feel disbelieved. I think it is time to find a psychologist.