Hi cejmom
Welcome to NeuroTalk.
I have only been a member for a short time but have discovered that it is a very supportive and knowledgeable community.
I am sorry to read about your daughter but it is good that the clinicians are doing a thorough investigation.
If Raynaud's disease applies to her, the information in this site might help you;
http://www.mayoclinic.org/diseases-c...n/con-20022916 .
All the best.