Quote:
Originally Posted by canagirl
Hi baba,
I know I feel like I'm being a child right now. I know many here have sfn and are in incredible amounts of pain. It's just nobody has said they have it everywhere like me ( tongue, lips, entire face, ears, scalp, neck, arms, back, chest u get the drift....it's getting bad. Everything that rubs me hurts. How much linger can I walk, cook, hold my baby? Lie down? Eat?
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No, you are definitely not being a child. I just wanted you to know that you are not alone. I have had the allodynia you describe and it hurts to be touched.
The pain is very scary and isolating. The morton lotion help some and epsom baths help me.
English Dave advocates distraction. I have found wearing cotton and silk, if you can find it decreases the pain with wearing clothes.
Thinking of you and your family.