Sorry that you are not getting the support you obviously need....it's NOT so called pain....and you are not neglecting your responsibility....with that being cleared you just need to asses you living condition; continue to due your best; know your limitations and continue to ask for help when you need it...

Sadly unless someone experiences this pain I don't think they will ever get it, even if they are supportive and go to your appointments and hear what the doctor is saying....

We know; don't give up; don't let the monster win....Keep up the fight and it's okay to be your life is changing and it's hard but you can manage with it...

Hope we help you a little here and there....