Junior Member
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Join Date: Mar 2014
Posts: 72
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Junior Member
Join Date: Mar 2014
Posts: 72
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I take Gralise (time release Nuerotin) 1,200 mg once a day. I take it before I go to bed so I sleep through the foggy side effects. Before that I took the regular Gabepetin at one point 600mg 3 X a day but I was able to get that done to 400mg 3X a day.
My analagy on it is you really don't feel it work, but you feel it when you miss a dose. You don't feel immediate relief like taking something for a headache. It sort of builds up over time, probally weeks depending on your dosage. They start you low and build you up, being patient is hard I know.
The burning & tingling are still there but a duller sensation if that makes any sense.
The Dr's have had me try Cymbalta (not for me made me an angry person) and Lyrica (too much weight gain). What I like about the Gralise is when I'm having one of those days (flares) I can take a regular Gabepetin 300mg sometime during the day and it takes enough of the edge off that I don't need something stronger.
I hope you find something that provides you relief, we all know none of this is any fun.
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My PN is considered Critical Illness Neuropathy. In October 2010 I left for a golf trip not feeling well, woke up in a hospital 21 days later. I was in an induced coma for treatment of Legioneers Disease. First day out of ICU I noticed the pain in my feet and as they say the rest is history.
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